middle of a desert canyon

Your ALS Resource Tool

EssentiALS

Introduction

Diagnosis, Mental Health, and Neck Weakness

1. Were you diagnosed within the last 6 months?

2. Have you had changes in your mood, excessive crying/laughing, anxiety, or depression?

3. Do you have neck weakness?

Bulbar

Speech, swallowing, and saliva

Bulbar refers to the problems with the muscles that control talking, swallowing, and managing saliva. These functions are controlled by the bulbar region of the brainstem.

4. Speech Changes

5. Salivation

6. Swallowing

Fine Motor

Handwriting, cutting foods, dressing & hygiene

Fine motor skills refer to the ability to perform small, precise movements, typically with the hands and fingers.

7. Handwriting

8. Do you have a feeding tube?

9a. Cutting food and handling utensils (patients with gastrostomy)

9b. Cutting food and handling utensils

10. Dressing and hygiene

Gross Motor

Turning in bed, Walking, using stairs

Gross motor skills refer to the ability to use the large muscles of the body to perform movements like walking, climbing stairs, or lifting objects.

11. Turning in bed and adjusting bedding

12. Walking

13. Climbing stairs

Respiratory

Shortness of breath and use of respiratory equipment

Respiratory function refers to how well a person can breathe using their own muscles. BiPAP is a piece of respiratory equipment that assists with breathing.

14. Shortness of breath

15. Shortness of breath when lying flat

16. Respiratory insufficiency

Note: Progress won’t be saved

Please Note: To protect your privacy, it is not possible to save your progress and continue at a later time.