EssentiALS Frequently Asked Questions (FAQ)

EssentiALS is a personalized education tool for people living with ALS and their caregivers. By answering a short questionnaire based on the ALS Functional Rating Scale, you’ll receive resources matched to your current needs, from mobility, speech, and breathing support to caregiver and advance planning tips.

No. The information provided through EssentiALS is for educational purposes only. It does not replace professional medical evaluation, diagnosis, or treatment. Please review any questions or concerns with your neurologist or ALS care team.

We designed EssentiALS for people with all stages of ALS and their caregivers. Whether you’re newly diagnosed or navigating more advanced challenges, this tool will provide timely information uniquely tailored to your current challenges.

Yes. You are encouraged to retake the quiz as your symptoms or care needs change. This helps ensure you’re receiving the most relevant resources based on your current stage of ALS.

We do not save, share, or track your responses. Our tool automatically matches your anonymous session responses with resources that can help you, your caregivers, and your family.

Yes. After completing the quiz, you can download your personalized education resources as PDF. This is a great resource to share with your care team or review later with family and caregivers.

There’s no set schedule—but many people find it helpful to revisit every few months, or anytime new symptoms arise, mobility changes occur, or major decisions are being discussed (like starting a feeding tube or using respiratory support).

These resources were developed by ALS specialists at Barrow Neurological Institute, including neurologists, nurse practitioners, and therapists. They offer practical, up-to-date guidance that reflects real-life patient experiences.

Absolutely. We encourage you to bring your questions to your next clinic visit. Your ALS team can help explain the next steps and tailor your care plan.